Felicia H. Stewart, MD, Wayne C. Shields, Ann C. Hwang, MD
UCSF Center for Reproductive Health Research & Policy
06/17/2005
In the wake of warnings that researchers who study AIDS
and other sexually transmitted diseases may face special scrutiny,
complying with instructions from staff at the National Institutes
of Health (NIH) to cleanse grant application abstracts of potentially
controversial terms appears a prudent course of action. After all,
a quick document scan and a few minor wording changes seem like
harmless compromises-but are they?
When the New York Times and Science broke the story of linguistic
scrutiny at the NIH in May 2003, the list of offending terminology
included "gay," "homosexual," "men who
have sex with men," "needle exchange," "abortion,"
"condom effectiveness," and "commercial sex workers."
Abortion being the hot-button issue in contemporary American politics,
many words and phrases have been targeted for their association-real
or imagined-to the "a-word."
In May 2002, at the United Nations Special Session on Children,
the United States delegation protested the use of the phrase "reproductive
health services," arguing that it connotes abortion. Allying
itself with Iraq, Iran, Libya, Sudan, and the Vatican, the U.S.
team pushed to remove "reproductive health services" from
the final conference declaration.
Six months later, the topic came up again, this time at a United
Nations population conference in Bangkok. There, the U.S. delegation
threatened to withdraw from the Cairo Programme of Action-a cornerstone
of international population policy since its adoption at the 1994
International Conference on Population and Development (ICPD)-unless
the terms "reproductive health services" and "reproductive
rights" were removed.
In April 2003, the Vatican published a 900-page glossary of words
and phrases the organization considers to be code for anti-Catholic
sentiment. The Lexicon on Ambiguous and Colloquial Terms about Family
Life and Ethical Questions expands the cloud of suspicion to surround
not just abortion but sexuality in general.
The Lexicon discusses not only "reproductive health" and
"reproductive rights," but also "safe sex" and
"gender," which Cardinal Alfonso Lopez Trujillo, director
of the Pontifical Council for the Family, explains suggests "radical
ideological feminism." The Lexicon states that "safe sex"
"feeds a dangerous illusion and opens the way to perverse consequences"
and concludes that there is no proof that condoms can prevent the
spread of AIDS.
Non-governmental organizations (NGOs) are already familiar with
the kind of demands now being imposed on academic scientists. A
January 2003 U.S. Agency for International Development (USAID) cable
directed all NGOs receiving any Agency funds for HIV/AIDS programs
to review their websites to "ensure the appropriateness of
the material."
All USAID-funded publications and programs should reflect "the
policies of the Bush administration," the cable advised, and
"activities and related communications" involving interventions
in high-risk groups such as injection drug users and prostitutes
"must be managed sensitively."
More recently, USAID Administrator Andrew Natsios reportedly banned
some NGOs who had been awarded USAID contracts from speaking directly
with the media and threatened to cut off funding to humanitarian
groups that inadequately promoted the fact that they receive U.S.
funds. NGOs should consider themselves "an arm of the U.S.
government," Natsios reportedly said, a standard that the Administration
now appears to be applying to government-funded scientists as well.
But given the realities of grants and funding, what are those of
us interested in promoting "reproductive health services,"
"human rights," and the health of "men who have sex
with men" to do?
The first step is to recognize that scrubbing language is not a
modest compromise, but more of a Faustian bargain. The second is
to make a personal commitment to work just as assiduously in combating
scientific censorship as in weeding out "controversial"
text.
The current atmosphere exudes anti-intellectual overtones evocative
of nothing less than book-burning. When "gender" and "safe
sex" are considered subversive and research on decreasing HIV
risk in vulnerable populations grounds for political scrutiny, the
threat is not just to individual researchers working in controversial
areas, but to the scientific community as a whole. Orwellian in
its brazenness, scope, and ambition, the war on words threatens
not only to curb speech but to stigmatize entire realms of thought.
Professional solidarity-standing together for uncensored speech
and scientific independence-is needed now more than ever. Don't
be fooled by a seemingly modest compromise. There is no place to
hide: your intellectual discipline could be next.
Original link: http://www.arhp.org/editorials/september2003.cfm
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